How Does Spina Bifida Affect A Person?

How long can a person live with spina bifida?

Not so long ago, spina bifida was considered a pediatric illness, and patients would simply continue to see their pediatric physicians into adulthood.

The average life span for an individual with the condition was 30 to 40 years, with renal failure as the most typical cause of death..

What problems does spina bifida cause?

Spina bifida can cause a wide range of symptoms, including problems with movement, bladder and bowel problems, and problems associated with hydrocephalus (excess fluid on the brain). The severity of the symptoms of spina bifida varies considerably, largely depending on the location of the gap in the spine.

Can you walk if you have spina bifida?

People affected by spina bifida get around in different ways. These include walking without any aids or assistance; walking with braces, crutches or walkers; and using wheelchairs. People with spina bifida higher on the spine (near the head) might have paralyzed legs and use wheelchairs.

Does spina bifida shorten lifespan?

With modern treatment, almost all children with myelomeningocele survive and most are able to live productive lives with some degree of independence. Even with these treatments, however, most have some degree of permanent leg paralysis and often difficulties with bowel and bladder function.

Can spina bifida be corrected?

Treatment. Currently, there is no cure for spina bifida, but there are a number of treatments available to help manage the disease and prevent complications. In some cases, if diagnosed before birth, the baby can undergo surgery while still in the womb in an effort to repair or minimize the spinal defect.

What is the main cause of spina bifida?

Scientists suspect the factors that cause spina bifida are multiple: genetic, nutritional, and environmental factors all play a role. Research studies indicate that insufficient intake of folic acid—a common B vitamin—in the mother’s diet is a key factor in causing spina bifida and other neural tube defects.

Can spina bifida cause problems later in life?

Medical problems that affect children with spina bifida continue and become increasingly difficult to manage throughout adulthood [25], and patients’ physical and neurologic conditions hinder their ability to function as independent individuals.

Does spina bifida run in families?

Most cases of spina bifida are sporadic, which means they occur in people with no history of the disorder in their family. A small percentage of cases have been reported to run in families; however, the condition does not have a clear pattern of inheritance.

How does spina bifida affect your life?

Mental Health and Well-Being Young adults with spina bifida might feel isolated from others, or have low self-esteem. This can cause them to become depressed. There are different ways to treat depression.

How does spina bifida affect the brain?

Spina bifida can affect how your baby’s brain, spine, spinal cord and meninges develop. Meninges are the tissues that cover and protect the brain and the spinal cord. The neural tube starts out as a tiny, flat ribbon that turns into a tube. NTDs happen if the tube doesn’t close completely.

Can you live a full life with spina bifida?

According to the Spina Bifida Association website, with some guidance, children with Spina Bifida can lead full lives. “Most do well in school, and many play in sports.

How old is the oldest person with spina bifida?

The International Federation for Spina Bifida and Hydrocephalus (IF) shares that Albert De Greve, born with a low lesion Spina Bifida in Zelzate, Belgium, on 13 March 1923, recently turned 90. Click here to read Albert’s story. Hed be 96 now.

Is Spina Bifida a disability?

A congenital disorder present from birth, spina bifida can cause growth impairments, musculoskeletal deformities, neurological disorders, and intellectual deficits, among other complications. … As such, spina bifida can qualify children and adults for disability benefits from the Social Security Administration (SSA).

Can spina bifida get worse with age?

People with spina bifida experience the usual manifestations of age, but since spina bifida puts pressure on many body systems, age-related declines in affected areas may occur sooner or be more severe. Shunt failure happens to adults, even those whose shunts have not been working for years.

Is Spina Bifida painful?

Adults with Spina Bifida and specifically Spina Bifida Occulta often experience pain.